https://www.rarediseasefilmfestival.com/work daily 0.75 2020-03-13 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478207741936-01D8VDKC68DDDMTA8ZDV/Our_Curse.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478208999079-U9DVEJEDRR2JCGE31DV7/Cuerdas.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1479847780901-ZOF2KHCHWH0HO5Y3QGL7/Imagine_poster.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1479847814590-UCHJNM4EPZ523AIA1EDH/Menkes_poster.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1502311572543-OV2CZDM106DYR5PA4O5X/TessPoster.png Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1502311839760-Y6LEAKYGFPE4FWFME3UH/UFA+email+poster.png Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1502312149698-EZP07RO7BCYF3CNZREJJ/special+blood+theatrical+poster_V9.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1503870850451-S820ZNXWOGUHQHDPK5QL/TAOL.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1560525558606-HSVU1D9WOOSBYSJIPUUH/ourfriendJon-posterSQR.jpg Films https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1560525304263-ISGCCBM49GM3TYI0AES7/Ian-posterSQR.jpg Films - 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Rare Disease in Top Hollywood Films - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2023/8/26/we-need-to-ritualize-chronic-compassion monthly 0.5 2023-08-26 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/4e621836-060f-48e0-96bf-a07825ed5b5f/TDC_Ritualize_IGsml.jpg A blog about rare disease and films about rare diseases. - We need to Ritualize Chronic Compassion - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2022/10/13/bybky3rxouj9eumdoa7ryw5rq6d46x monthly 0.5 2024-12-15 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/c8dfd74a-d361-4a70-990d-f9cbd45eaaa5/Tess_Thumb.jpg A blog about rare disease and films about rare diseases. - TESS IS NOT ALONE review - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2022/8/13/trite-but-true-all-the-life-lessons-you-need-to-learn-you-already-know monthly 0.5 2022-08-16 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/6ed0fc58-c9e6-4f93-931f-02564aaa5fc0/TriteTrue.jpg A blog about rare disease and films about rare diseases. - Trite but True - All the life lessons you need to learn, you already know. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2022/6/27/the-treachery-of-memory-while-grieving monthly 0.5 2022-06-27 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/e4807d55-18f5-4fb8-8eb9-8f35f4efbac5/Lucas_TreacheryMemorySmall.jpg A blog about rare disease and films about rare diseases. - The treachery of memory while grieving. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2022/1/7/the-top-5-rare-disease-films-of-2021 monthly 0.5 2022-01-07 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/66b99025-7513-4c01-b5ab-b36558d1b2a0/TDC_top5_2021_1AtrophyIG.jpg A blog about rare disease and films about rare diseases. - The Top 5 Rare Disease Films of 2021 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/27681055-8f07-4f55-8d39-b126b160893e/TDC_top5_2021_2LaforaIG.jpg A blog about rare disease and films about rare diseases. - The Top 5 Rare Disease Films of 2021 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/240fd53b-c518-403c-b8bb-f226be61eeb2/TDC_top5_2021_3MyTurnIG.jpg A blog about rare disease and films about rare diseases. - The Top 5 Rare Disease Films of 2021 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/8876d214-0648-4927-8c71-32ff92f3d3f9/TDC_top5_2021_4UnconditionalIG.jpg A blog about rare disease and films about rare diseases. - The Top 5 Rare Disease Films of 2021 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/10b2375d-becf-4e96-bc70-0cd6a272f2c0/TDC_top5_2021_5CountingIG.jpg A blog about rare disease and films about rare diseases. - The Top 5 Rare Disease Films of 2021 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2022/1/5/the-8-stages-of-rare-disease-advocacy monthly 0.5 2022-01-05 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/067c0884-037f-4061-bd29-80cec3c881cc/8Typesof+Advocacy.jpg A blog about rare disease and films about rare diseases. - The 8 stages of Rare Disease Advocacy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2021/10/8/what-to-keep-in-your-hospital-to-go-bag-if-youre-facing-a-rare-disease monthly 0.5 2021-10-08 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1633726657413-WMS03F8PB1R6X9B4Y1EF/Hospital+To-Go+Bag+%284%29.jpg A blog about rare disease and films about rare diseases. - What to keep in your hospital to go bag if you're facing a rare disease. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.rarediseasefilmfestival.com/blog/2021/4/8/a-pediatrician-who-is-also-a-rare-disease-mom-on-how-to-manage-your-care-team monthly 0.5 2021-04-08 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1617912962076-YHMMZUP6IZ89PEI9HK6Z/NicoleGlennTipsFor+Careteam.jpg A blog about rare disease and films about rare diseases. - A pediatrician (who is also a rare disease mom) on how to manage your care team. https://www.rarediseasefilmfestival.com/blog/2021/4/8/a-rare-disease-moms-tips-for-those-newly-diagnosed monthly 0.5 2021-04-08 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1617912577057-1QNEGKTUZN2K4UVIPMSB/BeckyBensonTips.jpg A blog about rare disease and films about rare diseases. - A rare disease mom's tips for those newly diagnosed. https://www.rarediseasefilmfestival.com/blog/2021/4/8/ring-theory-and-rare-disease-compassion-and-concern-go-toward-the-center monthly 0.5 2021-04-08 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1617912299126-4F8N6339KFEOYLWNV38H/BeckyBensonRingTheory.jpg A blog about rare disease and films about rare diseases. - Ring Theory and Rare Disease - Compassion and Concern go toward the center. https://www.rarediseasefilmfestival.com/blog/2021/1/7/tips-for-making-videos-during-a-pandemic-lockdown monthly 0.5 2021-01-08 https://www.rarediseasefilmfestival.com/blog/2020/7/22/more-hollywood-films-that-touch-on-rare-disease-this-time-als monthly 0.5 2020-07-22 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1595420502289-ZDRDU3G75C5TZ399ZB0W/TheOldGuard.png A blog about rare disease and films about rare diseases. - More Hollywood films that touch on Rare disease, this time ALS. “The Old Guard” has ALS in the backstory. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1595420292733-01ZQRGB3NM15HYCHO3CA/myTurn_thumb2.jpg A blog about rare disease and films about rare diseases. - More Hollywood films that touch on Rare disease, this time ALS. The film “My Turn” about the rare disease ALS is streaming on The Disorder Channel now. https://www.rarediseasefilmfestival.com/blog/2020/4/4/were-all-rare-disease-families-now monthly 0.5 2020-04-04 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1586012261548-CADC3TTHY8HQV0YCI71Y/AllRareCovid19sporesWebHDR.jpg A blog about rare disease and films about rare diseases. - We're all Rare Disease families now. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1586012310744-KXQZ0D96AWR81CZ054F9/CovidQuoteSmall.jpg A blog about rare disease and films about rare diseases. - We're all Rare Disease families now. https://www.rarediseasefilmfestival.com/blog/2020/3/2/how-to-make-your-own-rare-disease-film monthly 0.5 2020-03-04 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1583188408009-NB8VA96CLYKA0IO01AJY/InterviewSetUpthreeLightsWeb.jpg A blog about rare disease and films about rare diseases. - How to make your own rare-disease film. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1583188370417-PIPKYNRXXGGCAYMKVFHE/InterviewSetUpNoLightsWeb.jpg A blog about rare disease and films about rare diseases. - How to make your own rare-disease film. https://www.rarediseasefilmfestival.com/blog/2019/12/29/the-unbearable-lightness-of-being-on-oxygen monthly 0.5 2019-12-30 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1577666076799-9SGUL7UVSQKU3GIH07D4/IMG_2854.JPG A blog about rare disease and films about rare diseases. - The Unbearable Lightness of Being on Oxygen https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1577666207829-H6TQFKEHVXZ9C2NY7P08/IMG_2850.JPG A blog about rare disease and films about rare diseases. - The Unbearable Lightness of Being on Oxygen https://www.rarediseasefilmfestival.com/blog/2019/7/22/our-films-cover-a-lot-of-rare-diseases monthly 0.5 2019-07-22 https://www.rarediseasefilmfestival.com/blog/2019/5/26/the-oscar-winning-bawdy-costume-drama-that-could-have-been-a-rare-disease-film monthly 0.5 2019-09-20 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1558880462754-NKA6YUJYMW70U5OZ3Z3N/QueenAnneLitterSmall.png A blog about rare disease and films about rare diseases. - The Oscar Winning Bawdy Costume Drama That Could Have been a Rare Disease Film. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1559578460170-FG663W8XU2JECHZBX1W3/QueenAnneQuote.jpg A blog about rare disease and films about rare diseases. - The Oscar Winning Bawdy Costume Drama That Could Have been a Rare Disease Film. https://www.rarediseasefilmfestival.com/blog/2019/5/24/the-winning-throne monthly 0.5 2019-05-24 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1558708362455-W6DEALHNSJQ3BJYGK54F/GOTdragom.png A blog about rare disease and films about rare diseases. - The Winning Throne. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1558708764777-9GS2BJ3RSRF58ZE7HRF1/branStarkSmall.png A blog about rare disease and films about rare diseases. - The Winning Throne. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1558708936831-GG32V5D5YXFHEL1GJNFX/LucasGameofThronesSmall.jpg A blog about rare disease and films about rare diseases. - The Winning Throne. https://www.rarediseasefilmfestival.com/blog/2019/5/23/5-movies-you-didnt-know-were-about-rare-diseases-and-5-you-probably-did monthly 0.5 2019-06-17 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1558633879766-KIOM7FE4S9T9O0K637MY/pokemon-detective-pikachu.jpg A blog about rare disease and films about rare diseases. - 7 Movies you didn't know were about Rare diseases, and 5 you probably did. https://www.rarediseasefilmfestival.com/blog/2019/3/18/a-hollywood-fairy-tale-of-a-rare-disease-film monthly 0.5 2019-03-19 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1553024624289-5UWQI1UMQI6768TT2XOO/midSun2.jpg A blog about rare disease and films about rare diseases. - A Hollywood fairy tale of a Rare Disease Film. https://www.rarediseasefilmfestival.com/blog/2019/2/17/the-rare-awareness-film-disguised-as-a-super-hero-trilogy monthly 0.5 2019-02-17 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1550420193243-JP3O892HSJF0QPLRHK8E/Screen+Shot+2019-02-14+at+3.21.28+PM.png A blog about rare disease and films about rare diseases. - The Rare Awareness film disguised as a superhero trilogy. The caregivers in “Glass”. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1550420422237-S6UOM9355XEW8I6HQYP0/HordeQuote3.jpg A blog about rare disease and films about rare diseases. - The Rare Awareness film disguised as a superhero trilogy. The theme of believing in one’s self in the first two films shifts to getting the owrld to believe in the third film. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1550420255776-VVSFVYV2TSP3NRKZBMWD/GlassQuote.jpg A blog about rare disease and films about rare diseases. - The Rare Awareness film disguised as a superhero trilogy. An awareness video to go viral. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1550420537513-L1BIYIOUPQDJ5RO4YL58/SplitFletcherQuote.jpg A blog about rare disease and films about rare diseases. - The Rare Awareness film disguised as a superhero trilogy. https://www.rarediseasefilmfestival.com/blog/2019/2/3/the-rare-disease-movie-disguised-a-a-sci-fi-blockbuster monthly 0.5 2019-02-03 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1549209266680-2110RSQXTRXQPYHBWENJ/ArrivalRareDisease.png A blog about rare disease and films about rare diseases. - The rare disease movie disguised as a sci-fi blockbuster. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1549209350401-O7P4CGPUWMQOVNPHZ5K6/ArrivalRareDisease2.png A blog about rare disease and films about rare diseases. - The rare disease movie disguised as a sci-fi blockbuster. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1549209431495-NN1JHN2DXLASJ933GZVN/ArrivalQuote.jpg A blog about rare disease and films about rare diseases. - The rare disease movie disguised as a sci-fi blockbuster. https://www.rarediseasefilmfestival.com/blog/2019/1/25/why-i-cry-everytime-i-hear-this-is-me monthly 0.5 2019-05-26 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1548435327728-AKKCRDJRRTHOT990CD2O/thisisme.png A blog about rare disease and films about rare diseases. - Why I cry every time I hear "This is Me". https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1548435454851-HZHQ6MKJ3EPNHGPK9XP2/worthyOf.png A blog about rare disease and films about rare diseases. - Why I cry every time I hear "This is Me". https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1548435502372-TG0I55HJ8UC9WH9RVA47/glorious.png A blog about rare disease and films about rare diseases. - Why I cry every time I hear "This is Me". https://www.rarediseasefilmfestival.com/blog/2018/12/11/the-pitfalls-of-happy-face-advocacy monthly 0.5 2018-12-11 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1544565285890-NNXBTL953LBU7EASJ8RF/LukeYellCookie.jpg A blog about rare disease and films about rare diseases. - The Pitfalls of Happy Face Advocacy Here’s an unhappy moment. https://www.rarediseasefilmfestival.com/blog/2018/7/6/go-home-and-love-your-child monthly 0.5 2018-07-06 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1530889427850-SHLTN7S80SLP3RYCTHDT/DoctorBadNews.png A blog about rare disease and films about rare diseases. - Go home and love your child. https://www.rarediseasefilmfestival.com/blog/2018/4/11/when-how-are-you-is-a-loaded-question monthly 0.5 2018-04-11 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1523457152899-NFS8QNVM0YJGL25KJJ87/supermarket.png A blog about rare disease and films about rare diseases. - When "How are you?" is a loaded question. https://www.rarediseasefilmfestival.com/blog/2018/3/23/rare-awareness-award-winners monthly 0.5 2018-03-23 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1521824630182-PHZPXJXU4J5N2ES6LOSX/Rare+Disease+Day-8471.jpg A blog about rare disease and films about rare diseases. - Rare Awareness Award winners https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1521824738812-GPCK6575AP3M5YFGVSP1/Screen+Shot+2018-03-23+at+1.05.14+PM.png A blog about rare disease and films about rare diseases. - Rare Awareness Award winners https://www.rarediseasefilmfestival.com/blog/2017/12/30/the-least-wonderful-time-of-the-year monthly 0.5 2017-12-30 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1514646611237-JLJ3FHVDX9W22XUNBP08/DisneySIckTrip.jpg A blog about rare disease and films about rare diseases. - The Least Wonderful Time of the Year. https://www.rarediseasefilmfestival.com/blog/2017/12/21/hope-is-a-thing-with-talons monthly 0.5 2017-12-21 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1513871862438-6RUI6YHYGRHXLDV6Q4FG/1892191.jpg A blog about rare disease and films about rare diseases. - Hope is a thing with talons. https://www.rarediseasefilmfestival.com/blog/2017/12/8/we-beat-on-boats-against-the-current monthly 0.5 2017-12-08 https://www.rarediseasefilmfestival.com/blog/2017/11/17/unbabbeling-our-rare-voices monthly 0.5 2017-11-17 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1510932798926-3BJKAUMCKQF8WAC1ZDP4/TowerBabel.jpg A blog about rare disease and films about rare diseases. - Unbabbeling our rare voices. https://www.rarediseasefilmfestival.com/blog/2017/10/25/7000-films-wanted monthly 0.5 2017-10-25 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1508935316015-3OT2HX2M1LMJFIPSXE4J/filmsWanted.jpg A blog about rare disease and films 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https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478273003080-YZS2Q4CJ67GJUSZ1AATI/FindFilms.png help https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1488417003734-71C6ZDJZJ115BVPPXLY5/FindSponsors.png help https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478274402818-SIVKP0Y7BPPPP27UAFJ4/Attend.png help https://www.rarediseasefilmfestival.com/who daily 0.75 2019-09-26 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478230074161-NZ55GO9FO2J6OVUS6GTD/2RareDads.jpg Who We Are https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478809017918-9DNET0IOTEK2LRVGHHRP/BoBioPic.jpg Who We Are https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1478228531782-B6WPWRE37TKC4F77ZXP7/DDatGG.png Who We Are https://www.rarediseasefilmfestival.com/about daily 0.75 2017-01-18 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1484760428765-8EMWKJ3GQVKO4QJA4VDR/RDFFfinalLogo_sq.png About1 https://www.rarediseasefilmfestival.com/contact daily 0.75 2020-02-07 https://www.rarediseasefilmfestival.com/team daily 0.75 2017-08-15 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1479306964783-W6C241VR9KP0HFAFQ8FP/SqrJosh-HeadshotRDFF.jpg Our Advisors and Team Joshua Greer Board of Advisors Joshua Greer is an entrepreneur, inventor and philanthropist who has helped transformed numerous industries, including entertainment, advertising, and, more recently, health sciences. As President and Co-Founder of RealD, Greer positioned RealD to quickly become the gold standard for 3D in cinemas worldwide. Greer led the charge to engage filmmakers including James Cameron, Steven Spielberg and Martin Scorsese to adopt the medium. Following the successful IPO of RealD, Greer became involved in a number of charitable organizations and causes, specifically in the areas of Israel-Diaspora relations, Crohn’s and IBD research, and personalized medicine. He has also been a “coach” and advocate for young people affected by Crohn’s disease, a disease which he has had since the age of 12. Prior to his work at RealD, Greer was Co-Founder and Chief Convergence Officer of Walden Media, where he was involved in the development of such films as The Chronicles of Narnia, Holes, and Charlotte’s Web, as well as James Cameron's’ 3D documentaries Ghosts of the Abyss and Aliens of the Deep. . https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1479307089934-P8B6IIFL5895WALRUHL5/mikeporath_headshotRDFF.jpg Our Advisors and Team Mike Porath Board of Advisors Mike Porath is the founder and CEO of The Mighty (TheMighty.com), a digital publisher and platform that helps empower and connect millions of people living with diseases, disabilities and mental illnesses. He began his career as a journalist at ABC News, where he was the network's first overseas digital correspondent and where his reporting from Kosovo was awarded the top prize in online journalism. He has held a variety of writing, editing, producing and executive roles at ABC News, NBC News, The New York Times and AOL. Mike is also on the board of directors and fundraising chair of Dup15q Alliance, a non-profit organization that supports people with Dup15q syndrome, including his daughter. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1479255311585-UWQB0U3U91CWJXFW306X/janRDFF_3673.jpg Our Advisors and Team Jan Broberg-Carter Board of Advisors Dr. Broberg-Carter is a former emergency room doctor turned film composer/producer/music editor. She serves as a judge for six film festivals throughout Europe and the USA. She is a long-time member ofthe patron's circle at the Sundance Film Festival. Jan studied Film, Film Music, and Psychology at Dartmouth and earned her Master's Degree in Psychology there, later she earned a degree in Clinical Psychology from Harvard University. Later she furthered her studies at Oxford University, where she focused on Music Composition and Conducting. Jan has composed scores for 23 movies including documentary scores for The Battle of Algiers II, Menkes Disease: Finding Help & Hope, Little Voice: Sweet Ambition, Swift Justice, and Haiti: Small Miracles. https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1479299406525-V5WMFWKWO6CNMWN48246/Fumi.jpg Our Advisors and Team Fumi Kitahara PR Consultant Fumi Kitahara has worked in entertainment publicity and marketing for over 20 years, including Walt Disney Studios and DreamWorks SKG. As vice president of animation publicity at DreamWorks, she was instrumental in launching such acclaimed Academy Award®-winning films as Shrek, Madagascar and Over the Hedge. In 2007, Fumi left DreamWorks to open her own firm, the pr kitchen. She contributed to the publicity and awards campaigns for such Academy Award®-nominated films as Coraline, How to Train Your Dragon, ParaNorman, The Boxtrolls and Shaun the Sheep Movie. She has also worked on several Oscar®-nominated animated short films, such as French Roast, The Gruffalo, Room on the Broom, and The Dam Keeper. She has also been working closely with the Google Spotlight Stories . https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1495810740337-1OYMRVBIQ2FSKZ4QDJ42/PaulKidwellRDFF.jpg Our Advisors and Team Paul Kidwell Board of Advisors Paul Kidwell is a Boston-based, independent public relations/patient advocacy consultant providing media relations and patient engagement support for biopharmaceutical companies. Paul has more than 20 years of corporate and agency communications experience within the life science sector. During this time Paul has provided integrated public relations support for product launches, FDA approvals, national and international media campaigns, patient advocacy programs, supported major industry conferences, medical meetings and trade shows, and developed media strategies for the placement of stories in global top tier business and trade media. Paul holds a master’s degree in Public Relations from Boston University. More information can be found at: www.paulkidwell.com   https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1502758552084-SFTG44Q5KW8NTMOMKQ70/blank.jpg Our Advisors and Team https://www.rarediseasefilmfestival.com/about2 daily 0.75 2022-03-03 https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1573673197597-AL4LW3ZMWFMG3TT3M5Q6/BoZebra_2651.jpg About https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1559660788581-MDH3OIYGO1LT619L4M0A/blank.jpg About https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1559660799184-JXA2NUG9VZ2MH703DPHN/Takeda_small.jpg About https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1584461501632-RJWHA093C12WK7NEUG7U/blank.jpg About https://images.squarespace-cdn.com/content/v1/581b9ac6725e2598f00ef230/1584461438690-ZGV8P9KU29CF41C20YZP/Alnylam_small2020.jpg About 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