We are please to announce the list of films that will screen in our 2020 festival.
“Ondine” a new thriller from Academy Award nominated director and rare disease dad Tomasz Sliwinski
Ondine 40 minutes, addresses CCHS directed by Tomasz Śliwiński
Land of Rare Disease 2 minutes, addresses Scleroderma directed by Christina Loccke
Rare as One 6 minutes, addresses multiple disorders directed by Joanna Rudnick
Journey of Hope 14 minutes, addresses Mef 2C, Wolf Hirchhorn, Trip 12 directed by Ceri Hughes
Timothy Syndrome Alliance 11 minutes, addresses Timothy Syndrome directed by Rob Bradshaw
Thalassemia: Life Without Borders 5 minutes, addresses Thalassemia directed by David Mathew Walters
Life Through a Lens 11 minutes, addresses APBD directed by Jeff Levenson
Come Say Hi 6 minutes, addresses EB directed by Matt Finlin
Eddie Vedder helps raise awareness for research to cure Epidermolysis Bullosa in “Come Say Hi”.
Me, My Sister and Blau 8 minutes, addresses Blau Syndrome directed by Felix Townsin & Cheryl Lynn-Townsin
An Unexpected Chapter 6 minutes, addresses Cystic Fibrosis directed by Dina Rudick
GM1 Gangliosidosis Armand's Story 9 minutes, addresses GM1 directed by Aubrey Keith & Haley Shepard
A Wonderful Life For Scarlet 9 minutes, addresses Schinzel-Giedion Syndrome directed by Dorian Iribarren
Miracle Man 6 minutes, addresses CHAMP1 directed by Angelina Lotrecchiano & Sydney Novack
Koolen de Vries Syndrome 3 minutes, addresses Koolen de Vries Syndrome directed by Tom D. Garner
Stop the Bleeding Generic Hospital 16 minutes, addresses Hemophilia directed by Stephanie Abel Horowitz & Jessica Lauren Richmond
Living With PSC 6 minutes, addresses PSC directed by Niall McKay & Marissa Aroy
From Mila to More 11 minutes, addresses Batten Disease directed by Joanna Rudnick & Erika Brekke
PH1 of a Kind - Isabelle’s Story: Learning About PH1 2 minutes, addresses PKU directed by Seth Levine
PH1 of a Kind - Asha’s Story: Learning About Doctors’ Visits 2 minutes, addresses PKU directed by Seth Levine
Protein Kills Us 9 minutes, addresses PKU directed by Manolo Campos García
“Protein Kills US” post-apocalyptic thriller on the rare disease PKU.
PH1 of a Kind - Luuk’s Story: Learning to Stay Positive 2 minutes, addresses PKU directed by Seth Levine
Uncovered 20 minutes, addresses Thyroid Cancer directed by Ben Meredith
Mutlicolored Zebra: Theo's Story 14 minutes, addresses TBCK Syndrome directed by Donovan McCarty & Courtney Hardebeck McCarty
#Rareis My Cat Romeo 9 minutes, addresses EB directed by Jason Bellue
#Rareis The Lucky ones 7 minutes, addresses WAGR Syndrome directed by Jason Bellue
Rare in Common 25 minutes, addresses Duchenne MD, Sturge-Weber, Morquio A Syndrome, Osteogenesis Imperfecta directed by Alisa Shakarian & Marc Dole
Research is Hope 4 minutes, addresses multiple disorders directed by Christina Loccke & Griffin Hammond
Finding our Voice 35 minutes, addresses Apraxia directed by Evan Gardner
Journey into the Rare 6 minutes, addresses SETBP1 directed by Andrew Olson & Cordelaine Kline
Dustin Clark: The Hunanity in Who We Are 7 minutes, addresses Muscular dystrophy directed by Brandon Abbott
Charlotte and Cooper's Diagnostic quest 3 minutes, addresses FAM177A1 directed by Jill Hawkins
Cure Rare Disease 6 minutes, addresses Duchenne MD directed by Pat Lore
Overexposed 20 minutes, addresses EPP directed by Andrea Minoglio
The First Color 14 minutes, addresses ALS directed by Ericka de Alexander
Growing up with FSHD 25 minutes, addresses Facioscapulohumeral Dystrophy directed by Alexi Pappas
No Matter How Rare 8 minutes, addresses Congenital Dyserythropoietic Anemia directed by Romal Mitr
Quest to a Cure 6 minutes, addresses HNRNPH2 Mutations directed by Scott DeFillippo
DakotaChrome 15 minutes, addresses Multiple Sclerosis directed by D.J. Haye
Faithfully 12 minutes, addresses Retinitis Pigmentosa directed by Chad Smathers & Kirsten Pfeiffer
Tess is Not Alone 8 minutes, addresses USP7 directed by Bo Bigelow
Menkes Disease Finding Help and Hope 12 minutes, addresses Menkes Syndrome directed by Daniel DeFabio
Unconditional 10 minutes, addresses PACs1 Syndrome directed by Jon Dorflinger
Fifth Birthday 4 minutes, addresses various directed by Jorgy Cruz
The Race 10.5 minutes, addresses Huntington’s Disease directed by Dina Rudick
One in A Million 10 minutes, addresses Charcot Marie Tooth directed by Ross Kaufman & Jeremiah Zagar
A Day in My Life 4 minutes, addresses cystic fibrosis directed by Joe Berg
Perfect Brothers 4.5 minutes, addresses Goldenhar Syndrome directed by Claire Banks
Treacher Collins in Frame 10 minutes, addresses Treacher Collins Syndrome directed by Rick Guidotti
Imagine 10 minutes, addresses Niemann Pick Type C directed by Carl mason
My Dad is Orange 7 minutes, addresses Synesthesia directed by Elle Ralph
Magic Bracelet 18 minutes, addresses Mitochondrial Disease directed by Jon Poll
My Dad Matthew 6 minutes, addresses advocacy / cerebral palsy directed by John Schaffer
This is Michelle 8 minutes, addresses Epidermolysis Bullosa directed by Patrice Lighter
Brick in the Wall 18 minutes, addresses Myotubular myopathy (MTM) directed by Seth Evans & Jordan Danelz
Bad Day with Rare 7 minutes, addresses eight rare diseases directed by Daniel DeFabio
SRF film 4 minutes, addresses SYNGAP1 directed by Bo Bigelow
Love is Out There 5 minutes, addresses FTD directed by Ghita Benislimane