The Netflix movie “The Old Guard” uses the pain of a man who lost his wife to ALS to motivate his actions that drive the plot (spoilers on the link.)
“The Old Guard” has ALS in the backstory.
Dagmar Munn of ALS News Todays gets into that film and a few others that deal with ALS here:
https://alsnewstoday.com/2020/07/21/lets-go-to-the-movies/
And over on our new TV channel, The Disorder Channel, you can watch “My Turn”. “My Turn” follows professional hockey player Scott Matzka as he grapples with ALS and plans for the remainder of his life while relentlessly advocating to find a cure for the terminal disease. Scott Matzka was in peak physical condition, and enjoyed a 13 year career as a professional hockey player for the Cardiff Devils, Grand Rapids Griffins, Cleveland Barons, Atlantic City Boardwalk Bullies, and Kalamazoo Wings.
The film “My Turn” about the rare disease ALS is streaming on The Disorder Channel now.