• About
  • press
  • blog
  • Films
  • contact
Menu

DISORDER: The Rare Disease Film Festival

  • About
  • press
  • blog
  • Films
  • contact
rarediseasefilmfoftheweekA.png

We’re glad to introduce a new weekly spotlight on some of the amazing Rare Disease films out there. Each week we will pick one film to highlight here and include the link to watch it online. Be sure to watch them in full screen mode. Most of these will be films we’ve screened at our film festival.

"This is Michelle" on EB

February 5, 2020

Actor William H. Macy narrates this look at Michelle Hall as she faces EB (Epidermolysis Bullosa) and works at a foundation that fights to find the cure.

Directed by Patrice Lighter - 8 minutes

← "Finn" on Hunter Syndrome MPS"Counting Every Second" on GAN →

Disorder: RDFF is produced by Rare Outreach Coalition, LLC.